Faces of Kansas City: Girl's battle with serious illness ends, RIP Dylynn


There's a sad update concerning a little girl featured on Faces of Kansas City this summer.

After battling serious illness for most of her short life, Dylynn Watterson passed away earlier this week.

When she was just 15 months old Dylynn was diagnosed with a severe case of pulmonary hypertension. She needed oxygen tubes to survive and her parents were told that Dylynn would never make it to her second birthday.

There was more heartbreak when doctors discovered tumors on her spine.

When KCTV5's Brad Stephens met the Watterson's in June, Dylynn's mom and dad said that each day with her was always better than the last and that they were astounded at her cheerfulness in spite of her health problems.

Dylynn passed away on Monday in Washington State while she and her parents were visiting relatives. She was 4 years old.

A memorial fund for Dylynn has been established at Enterprise Bank at 444 East Santa Fe in Olathe, KS.


Previous story:

A 4-year-old Olathe, KS, girl continues to beat the odds and baffle her doctors.

Dylynn Watterson's world consists of her "all-girl" bedroom that's a treasure trove of toys, books and games.

Dylynn is 4 1/2 years old and that is a miracle.

"Her lungs don't oxygenate the blood like it's supposed to and they call it idiopathic because they don't know what caused it," Heather Watterson, Dylynn's mother, said.

When she was just 15 months old, Dylynn's parents were dealt crushing news.

"They told us to plan for a funeral and that if she did live she wouldn't make it past 2," Dave Watterson, Dylynn's father, said.

She was diagnosed with a severe case of pulmonary hypertension. She had stopped eating and needed oxygen tubes to survive.

But Dylynn defied the odds and other predictions that she would go blind or become brain dead.

"We didn't know if she would ever walk because of the tumor on her spine. She started walking last Fourth of July," Heather Watterson said.

It's the tumor on her spine that's preventing the one thing Dylynn needs most - a lung transplant, meaning Dylynn's oxygen and feeding tubes are never disconnected.

Yet, the young girl is blossoming and so full of life. She soaks up books, loves to play and she really loves to sing.

Dylynn's nurse, Kelsy, helps provide in-home medical care.

"I just think she has an amazing set of doctors. She sees a lot of specialists, not only for her pulmonary hypertension, but also for her skeletal abnormality," Heather Watterson said.

In spite of her medical problems, Dylynn's parents focus on the positive.

"I don't know how you couldn't have fun with her, she's so easy to be around and to take care of. She's such a joy," Dave Watterson said.

Despite the positives, her father says he and his wife live with fear constantly.

"Every day, every second counts. With this disease, you don't know, so every morning when we wake up, we go to her bedroom hoping that she's breathing, not knowing what it's going to be," he said.

They've learned to cherish the simple stuff that most people take for granted because, in their house, each new day brings a mixture of hope and reality.

"It's scary because you don't know if finally that day has come or if you have 20 more years. We don't know if we have 20 years or 20 minutes, we don't know," Dave Watterson said.

Copyright 2013 KCTV (Meredith Corp.) All rights reserved.



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