Newborns are screened for all kinds of diseases and complications. But thousands of babies could be missing out on a non-invasive and potentially life-saving test.
It started as a mother's intuition into the condition of her little girl, and now that inquiry could lead to a law that could mean life or death for Missouri newborns.
Watching 4-year-old Chloe Manz tumble across her living floor, it is hard to believe the energetic, athletic little girl suffers from heart problems.
It was a diagnosis her family never would have known if her mother didn't question the nursing staff after Chloe's delivery.
"I felt like something was wrong. I can't explain it. I just had a bad feeling. I mentioned it to the nurses and they reassured me everything was fine," Chloe's mother, Kelly Manz, said.
But Manz wouldn't take no for an answer and after an hour-long exchange, she insisted the nurses take Chloe to the nursery for further observation.
They did and also checked Chloe's oxygen levels.
"A healthy baby should measure 94 to 100 percent. And Chloe measured in the low 60 percent, so she was only getting 60 percent of oxygen," Manz said.
Further tests showed a congenital heart defect, and at 4 months old, Chloe had open heart surgery. It was one of a series of operations she already undergone. And she'll likely need another when she's a teenager.
Now, Manz is pushing for other families to get the same non-invasive screening Chloe received.
Senate Bill 230, also dubbed Chloe's Law, would make pulse oximetry tests routine for all newborns in Missouri. Manz has been lobbying for this bill for the past four years.
"I think with the support of the March of Dimes, American Heart Association and other organizations, I think we're really on tract to get that law passed this year," she said.
It is a law Manz says would bring peace of mind or trigger immediate action for Missouri families.
"There are more families that are going to have heart defects with their children and this law is for them. So their babies will have a chance to get medical intervention immediately," she said.
Missouri lawmakers could vote on SB 230 later this month. Kansas is also considering a similar measure.
In 2011, Health and Human Services Secretary Kathleen Sebelius recommended the pulse oximetry screening to the universal newborn panel. However, that doesn't mean states have to adopt that recommendation.
Copyright 2013 KCTV (Meredith Corp.) All rights reserved.
Friday, May 17 2013 7:16 PM EDT2013-05-17 23:16:53 GMT
One person has died in a crash near Harrisonville, MO, Thursday evening. The crash happened on Missouri Highway 7 and Walker Road. It involved a car and a tractor-trailer. Harrisonville is in Cass County.More >
Savannah Nash celebrated her 16th birthday last week. She died Thursday when her car slammed into a semi while she was texting during her first time driving by herself.More >
Saturday, May 18 2013 6:23 PM EDT2013-05-18 22:23:41 GMT
The National Weather Service says there is a slight risk for severe weather on Sunday, and isolated tornadoes and supercell storms are possible.The threat for severe weather will continue into Monday.StormsMore >
The National Weather Service said there is a moderate risk for severe weather on Sunday, and isolated tornadoes and supercell storms are possible.More >
Friday, May 17 2013 4:52 PM EDT2013-05-17 20:52:00 GMT
An 11-year-old girl is recovering after a distracted driver hit her and then fled.She is recovering at Children's Mercy Hospital with a broken arm, ruptured ear drum and fractured pelvis. Her family isMore >
An 11-year-old girl is recovering after a distracted driver hit her and then fled.More >
Friday, May 17 2013 6:47 PM EDT2013-05-17 22:47:09 GMT
Imagine suffering a medical emergency in a foreign country, half a world away. It happened to a man from Overland Park, KS, in Japan. Now, his family is trying to come up with a way to get him home whereMore >
An Overland Park family is trying to raise enough money to get their son back to the U.S. from Japan after he suffered a massive stroke in the other country.More >
Friday, May 17 2013 7:20 PM EDT2013-05-17 23:20:10 GMT
The Rachael Ray show flew to New York a puppy that survived a month inside a locked car at Kansas City's tow lot.Ray and guest co-host Regis Philbin fawned over Kia, who was accompanied by Tori Fugate,More >
Television hosts Rachael Ray and Regis Philbin fawned this week over a puppy rescued earlier this month after living nearly a month inside a locked vehicle at Kansas City's municipal impound lot.More >
Saturday, May 18 2013 3:19 PM EDT2013-05-18 19:19:04 GMT
A Kansas City woman behind a new youth literacy program celebrated a milestone Friday night and none too soon. Jean Rundle is suffering from a heart condition and in quickly declining health. She neverMore >
A Kansas City woman behind a new youth literacy program celebrated a milestone Friday night and none too soon.More >
Friday, May 17 2013 7:11 PM EDT2013-05-17 23:11:46 GMT
Students from a suburban Kansas City school district will be nearly 600 pounds lighter when they return Friday from the spring semester at a weight-loss boarding school in South Carolina. That amountMore >
Students from the Independence School District were 600 pounds lighter when they returned Friday from the spring semester at a weight-loss boarding school in South Carolina.More >
Saturday, May 18 2013 12:47 AM EDT2013-05-18 04:47:49 GMT
For the first time, the University of Kansas awarded two Wounded Warrior Scholarships. The money, of $10,000/year for up to four years, goes to students who are injured veterans or caretakers of injuredMore >
A young marine from Kansas City, KS, was one of two recipients of the University of Kansas' new Wounded Warrior Scholarship.More >
Friday, May 17 2013 2:21 PM EDT2013-05-17 18:21:35 GMT
A woman is in custody after she allegedly struck her father in the head with a pistol, Overland Park police said Friday.The woman, who is in her middle 20s, was taken into custody about 11 a.m. This wasMore >
A woman is in custody after she allegedly struck her father in the head with a pistol, Overland Park police said Friday.More >