The Macan family of Roeland Park, KS, is heading to Cincinnati, OH, on Sunday to see if their youngest son Bo is a candidate for a bone marrow transplant.
"Hopefully we'll be able to have a bone marrow transplant to fix some things. He has diabetes, growth hormone deficiency and a thyroid problem, all kinds of yucky things," said Bo's mother Carolyn Macan.
Super Bo, as his mom calls him has IPEX. It's a very rare immune system disease. People with IPEX don't have a certain type of white blood cell that regulates the immune system. Bo has the only known case in Kansas or Missouri.
"Essentially he has no immune system. They're hoping the bone marrow will fix his immune system. Getting a cold for him is three to five days in the hospital," Macan said.
Saturday morning, the Macan's friends and neighbors held a bake sale, hoping to give whatever support they could.
"The kids really wanted to show Bo they could make a difference too, and not just make it about what the adults do. Really get involved," said Amanda McCoy, a family friend.
Bo's mom said she's overwhelmed that so many people care so much.
"A lady just stopped and handed me a card, it was not signed and it had $100 in it," Macan said. "I have no idea who she was, but thank you."
Bo and Carolyn Macan will spend up to 18 weeks in Cincinnati if the bone marrow transplant comes through. Bo's oldest sister Leksi said she'll miss her mom and brother, but can't believe how much her classmates at Roseland Elementary have helped.
"It's really cool for people to do that for my brother," Leksi said.
Sunday, May 19 2013 11:52 AM EDT2013-05-19 15:52:39 GMT
The National Weather Service says there is a slight risk for severe weather on Sunday, and isolated tornadoes and supercell storms are possible.The threat for severe weather will continue into Monday.StormsMore >
The National Weather Service said there is a moderate risk for severe weather on Sunday, and isolated tornadoes and supercell storms are possible.More >
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Saturday, May 18 2013 2:27 PM EDT2013-05-18 18:27:31 GMT
Students are calling the death of a Harrisonville teen a rude awakening. Troopers said 16-year-old Savannah Nash pulled in front of a semi Thursday at Missouri Highway 7 and Walker Road. Savannah wasMore >
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Saturday, May 18 2013 7:40 PM EDT2013-05-18 23:40:22 GMT
A bank on the Country Club Plaza was robbed Saturday afternoon. The FBI reported the Commerce Bank located at 47th Street and Wornall Road was robbed.They have provided little details about a suspect descriptionMore >
A bank on the Country Club Plaza was robbed Saturday afternoon.More >
Saturday, May 18 2013 11:00 AM EDT2013-05-18 15:00:13 GMT
(CNN) – Chances are your smartphone contains some of your life's most important numbers, phone numbers, birthdays, maybe even bank or social security numbers. It's convenient to store so much informationMore >
It's convenient to store so much information in one place, but with wireless threats on the rise, you need to keep your personal data secure.More >
Sunday, May 19 2013 12:27 PM EDT2013-05-19 16:27:25 GMT
Passengers on a party bus ended up in the hospital early Sunday morning after a wreck. The crash happened about 3 a.m. on U.S. Highway 71 near Swope Parkway. An ambulance took several passengers to anMore >
Passengers on a party bus ended up in the hospital early Sunday morning after a wreck.More >